WE’RE IGNITING A GLOBAL REVOLUTION IN ME CARE
Our movement fights for recognition, education, and research so that, one day, all people with ME and CFS will have support and access to compassionate and effective care.
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#MillionsMissing Virtual Gallery
The pandemic has quadrupled the number of people living with the complex disease of myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) to around 9 million in the U.S. Half of the Long COVID community meets the criteria for ME/CFS.
#MEAction set up 300 empty beds
#MEAction set up 300 empty beds covered in red blankets and adorned with personalized pillowcases beneath the Washington Monument last Friday to represent the millions of people missing from their lives due to ME/CFS and Long COVID. For millions of us, the bed has become both a refuge and a prison.
MillionsMissing Event
#MEAction held a press conference on May 12th, 2023- for #MillionsMissing, an event representing the millions of people missing from their lives due to ME and Long COVID. in front of the installation, featuring eight patient advocates from both communities.
Jaime Seltzer
https://www.youtube.com/watch?v=wbzGqAuGmKQ
“Every one of those numbers has a name, and every name is at the core of a story of profound loss,” said Jaime Seltzer, #MEAction Director of Scientific and Medical Outreach, referring to the estimated 9 million with ME/CFS.