A global campaign for ME health equality

May 2020 - Coming Soon! 

#MillionsMissing is a global campaign for myalgic encephalomyelitis (ME) health equity, led by #MEAction. We rally around the world for increased government funding for research, clinical trials, medical education and public awareness.

We call ourselves the “Millions Missing” because there are millions of people with ME who are too sick to protest, there are millions of dollars missing from government research, and there are millions of doctors not being educated about ME. The first global #MillionsMissing protests took place in May 2016. It has since grown each year to an astounding 100+ cities and virtual protests in 2019. 

ME (commonly known as "chronic fatigue syndrome") is a systemic neuroimmune disease characterized by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound and an estimated 75% unable to work.  ME affects 15 to 30 million around the world, yet this disease remains invisible and people are missing from their own lives.

#MEAction is an international network of patients fighting for health equality for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). We are a 501(c)3 organization supported by a team of staff. 

#MillionsMissing takes place each year in May. Information about the 2020 #MillionsMissing will be posted at the beginning of the year.

May 2019 Cities

Click on your city to view the event page

*indicates private protests

Australia

Brisbane*

Melbourne

Palm Cove

Perth

Sydney

 

Belgium

Diest

Gent

 

Brazil

Rio de Janeiro*

 

Canada

Calgary

Halifax

Hamilton*

Kamloops

Nelson

Ottawa

Toronto

Vancouver

Victoria

 

Czech Republic

Prague

 

Denmark

København

 

France

Bordeaux

Chateauxbourg

Noce

 

Finland

Helsinki

 

Germany

Berlin

Munich

Halle

 

Hong Kong

Central

 

Italy

Rome

 

Japan

Tokyo

 

Mexico

Mexico City

 

Netherlands 

Den Haag*

 

New Zealand

Nationwide virtual campaign

 

Norway

Harstad

Oslo

Stavanger

Trondheim

 

South Africa

Cape Town

Pretoria

Spain

Bilbao

 

Sweden

Stockholm

Umea

Goteborg*

 

Switzerland

Zurich

 

United States

Anderson*

Atlanta

Austin

Boston

Canandaigua*

Columbia

Denver

East Lansing*

Eau Claire

Fort Lauderdale*

Fort Myers*

Gloucester*

Great Falls*

Gustine

Gwinn*

Houston

Huntington Station*

Indianapolis*

Ithaca*

Johnstown*

Las Vegas*

Los Angeles

Kirkland*

Markham*

Muskegon*

Minneapolis

Nevada City

New York City (5/11)

New York City (5/10)

Orlando

Plymouth*

Portland

Providence*

Raleigh*

Rosedale*

Salt Lake City

San Diego

San Francisco

San Ramon*

Seattle

Shaker Heights*

Spokane*

St. Petersburg*

Tampa*

Tucson

Tulsa

Walker*

Wynnewood*

 

 

 

 

 

 

United Kingdom

Alexandria*

Annathil*

Andover*

Anglesey*

Belfast

Birmingham

Bingley*

Bradford*

Brighton

Bristol

Cambridge

Cardiff, Wales

Carluke*

Cayton*

Chelmsford*

Cleethorpes*

Cockermouth*

Colchester*

College Green

Craigavon*

Crowthorne*

Durham

Falkirk, Scotland

Glasgow, Scotland

Gloucestershire

Hebden Bridge

Hull*

King’s Lynn

Langho

Leeds

Leicester

Lewes

London

Liverpool

Loughborough*

Manchester

Matlock*

Morecambe

Newcastle-upon-Tyne

Newquay

Norwich

Nottingham

Pontefract*

Shrewsbury

Sheffield

Southampton

Stourport in Severn*

St. Albans

St. Ives

Sunderland

Tamworth*

Teignmouth*

Thornaby-on-Tees*

Tiverton*

Wales - Virtual