A global campaign for ME health equality
May 2020 - Coming Soon!
#MillionsMissing is a global campaign for myalgic encephalomyelitis (ME) health equity, led by #MEAction. We rally around the world for increased government funding for research, clinical trials, medical education and public awareness.
We call ourselves the “Millions Missing” because there are millions of people with ME who are too sick to protest, there are millions of dollars missing from government research, and there are millions of doctors not being educated about ME. The first global #MillionsMissing protests took place in May 2016. It has since grown each year to an astounding 100+ cities and virtual protests in 2019.
ME (commonly known as "chronic fatigue syndrome") is a systemic neuroimmune disease characterized by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound and an estimated 75% unable to work. ME affects 15 to 30 million around the world, yet this disease remains invisible and people are missing from their own lives.
#MEAction is an international network of patients fighting for health equality for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). We are a 501(c)3 organization supported by a team of staff.
#MillionsMissing takes place each year in May. Information about the 2020 #MillionsMissing will be posted at the beginning of the year.
May 2019 Cities
Click on your city to view the event page
*indicates private protests
Rio de Janeiro*
New York City (5/11)
Stourport in Severn*
- #MillionsMissing 2020 UK & Scotland Organising CallPlease join us for a #MillionsMissing UK & Scotland with regards to the 2020 campaign. Open discussion is always encouraged and... Read more »
- #MEAction Volunteer-of-the-Month: She’s been Fighting for Change for Four DecadesThis month, #MEAction is honored to nominate Wilhelmina Jenkins as our Volunteer-of-the-Month. Wilhelmina has been fighting for recognition and progress... Read more »